Bibliography for POPLPRAC 720 Psychosocial Issues in Palliative Care BETA

(1)

Rousseau, P. C. No One Knew. Journal of Palliative Medicine 2014, 17 (7), 861–862. https://doi.org/10.1089/jpm.2013.0491.

(2)

Cooley, C.; Aranda, S. Providing Total Patient Care: The Power of Reflection. International Journal of Palliative Nursing 2005, 11 (12), 608–608. https://doi.org/10.12968/ijpn.2005.11.12.20225.

(3)

Hoffman, R. D. Buddha in Room Eight. Patient Education and Counseling 2012, 88 (1), 2–3. https://doi.org/10.1016/j.pec.2011.12.013.

(4)

Botti, Mari RN, RM, BN, PhD, MRCNA. Barriers in Providing Psychosocial Support for Patients With Cancer. Cancer Nursing 29 (4), 309–316.

(5)

Harding, Richard1List, Sally2Epiphaniou, Eleni1Jones, Hannah1. How Can Informal Caregivers in Cancer and Palliative Care Be Supported? An Updated Systematic Literature Review of Interventions and Their Effectiveness. Palliative Medicine 2012, 26 (1), 7–22.

(6)

Samuels, M.; Betts, J. Crossing the Threshold from Description to Deconstruction and Reconstruction: Using Self‐assessment to Deepen Reflection. Reflective Practice 2007, 8 (2), 269–283. https://doi.org/10.1080/14623940701289410.

(7)

Spotlight on Palliative Care beyond Cancer.

(8)

Hanks, G. W. C. Oxford Textbook of Palliative Medicine, 4th ed.; Oxford University Press: Oxford, 2009.

(9)

Yedidia, M. J.; MacGregor, B. Confronting the Prospect of Dying. Journal of Pain and Symptom Management 2001, 22 (4), 807–819. https://doi.org/10.1016/S0885-3924(01)00325-6.

(10)

Broom, A.; Kirby, E.; Good, P.; Wootton, J.; Adams, J. The Troubles of Telling: Managing Communication About the End of Life. Qualitative Health Research 2014, 24 (2), 151–162. https://doi.org/10.1177/1049732313519709.

(11)

Casarett, David J.1,2,3 casarett@mail.med.upenn.eduQuill, Timothy E.1,2,3. ‘I’m Not Ready for Hospice’: Strategies for Timely and Effective Hospice Discussions. Annals of Internal Medicine 2007, 146 (6).

(12)

Faulkner, A.; Maguire, P. Talking to Cancer Patients and Their Relatives; Oxford University Press: Oxford, 1994; Vol. Oxford medical publications.

(13)

Fallowfield, LJ1Jenkins, VA2Beveridge, HA3. Truth May Hurt but Deceit Hurts More: Communication in Palliative Care. Palliative Medicine 2002, 16 (4), 297–303.

(14)

Hawken, S. REBELS: An Approach to Communication Challenges in the Consultation. The New Zealand family physician., 2008, 35, 274–277.

(15)

Imam, Towhid. The Conversation. Journal of Palliative Medicine 2015, 18 (2), 195–196.

(16)

Kirk, Peter clinical professor (family medicine and palliative care)1. What Do Patients Receiving Palliative Care for Cancer and Their Families Want to Be Told? A Canadian and Australian Qualitative Study. BMJ 5AD, 328 (7452), 1343–1349.

(17)

McCarthy, D. M.; Waite, K. R.; Curtis, L. M.; Engel, K. G.; Baker, D. W.; Wolf, M. S. What Did the Doctor Say? Health Literacy and Recall of Medical Instructions. Medical Care 2012, 50 (4), 277–282. https://doi.org/10.1097/MLR.0b013e318241e8e1.

(18)

Maguire, P.; Pitceathly, C. Managing the Difficult Consultation. Clinical Medicine 2003, 3 (6), 532–537. https://doi.org/10.7861/clinmedicine.3-6-532.

(19)

Maguire, P.; Pitceathly, C. Managing the Difficult Consultation. Clinical Medicine 2003, 3 (6), 532–537. https://doi.org/10.7861/clinmedicine.3-6-532.

(20)

Zapka, Jane G. ScD. End-of-Life Communication and Hospital Nurses: An Educational Pilot. The Journal of Cardiovascular Nursing 21 (3), 223–231.

(21)

Miller, Linda. Effective Communication with Older People. Nursing Standard No. 9, 45–50.

(22)

What do you want, sorry? Talking about end of life care for people with dementia | EAPC Blog. https://eapcnet.wordpress.com/2013/07/21/what-do-you-want-sorry-talking-about-end-of-life-care-for-people-with-dementia/.

(23)

Amoah, C. F. The Central Importance of Spirituality in Palliative Care. International Journal of Palliative Nursing 2011, 17 (7), 353–358. https://doi.org/10.12968/ijpn.2011.17.7.353.

(24)

Back, Anthony L.1Rushton, Cynda H.2Kaszniak, Alfred W.3Halifax, Joan S.4. ‘Why Are We Doing This?’: Clinician Helplessness in the Face of Suffering. Journal of Palliative Medicine 2015, 18 (1), 26–30.

(25)

Grant, L.; Murray, S. A.; Sheikh, A. Spiritual Dimensions of Dying in Pluralist Societies. BMJ 2010, 341 (sep16 2), c4859–c4859. https://doi.org/10.1136/bmj.c4859.

(26)

M. Buchholz, W. Doctor Chaplain, Can You Help Me? Journal of Palliative Care & Medicine 2014, 04 (05). https://doi.org/10.4172/2165-7386.1000187.

(27)

Chochinov, H. M. Dignity and the Essence of Medicine: The A, B, C, and D of Dignity Conserving Care. BMJ 2007, 335 (7612), 184–187. https://doi.org/10.1136/bmj.39244.650926.47.

(28)

Chochinov, Harvey Max1 harvey.chochinov@cancercare.mb.caCann, Beverley J.2. Interventions to Enhance the Spiritual Aspects of Dying. Journal of Palliative Medicine 2005, 8.

(29)

Chrash, M.; Mulich, B.; Patton, C. M. The APN Role in Holistic Assessment and Integration of Spiritual Assessment for Advance Care Planning. Journal of the American Academy of Nurse Practitioners 2011, 23 (10), 530–536. https://doi.org/10.1111/j.1745-7599.2011.00644.x.

(30)

Daaleman, T. P.; Usher, B. M.; Williams, S. W.; Rawlings, J.; Hanson, L. C. An Exploratory Study of Spiritual Care at the End of Life. The Annals of Family Medicine 2008, 6 (5), 406–411. https://doi.org/10.1370/afm.883.

(31)

Dein, S.; Stygall, J. Does Being Religious Help or Hinder Coping with Chronic Illness? A Critical Literature Review. Palliative Medicine 1997, 11 (4), 291–298. https://doi.org/10.1177/026921639701100405.

(32)

Egan, R.; MacLeod, R.; Jaye, C.; McGee, R.; Baxter, J.; Herbison, P. What Is Spirituality? Evidence from a New Zealand Hospice Study. Mortality 2011, 16 (4), 307–324. https://doi.org/10.1080/13576275.2011.613267.

(33)

Hall, S.; Edmonds, P.; Harding, R.; Chochinov, H.; Higginson, I. J. Assessing the Feasibility, Acceptability and Potential Effectiveness of Dignity Therapy for People with Advanced Cancer Referred to a Hospital-Based Palliative Care Team: Study Protocol. BMC Palliative Care 2009, 8 (1). https://doi.org/10.1186/1472-684X-8-5.

(34)

Harrington, A. A Beginning Understanding of Caregivers’ Spiritual Needs When Relinquishing a Loved One to a Palliative Care Setting. Journal of Religion, Spirituality & Aging 2012, 24 (1–2), 131–145. https://doi.org/10.1080/15528030.2012.633055.

(35)

Kearney, M. A Place of Healing: Working with Nature & Soul at the End of Life; Spring Journal Books: New Orleans, La, 2009.

(36)

Mount, Balfour1 balfour.mount@mcgill.ca. Healing and Palliative Care: Charting Our Way Forward. Palliative Medicine 2003, 17 (8), 657–658.

(37)

Puchalski, C. Spiritual Issues in Palliative Care. In Handbook of psychiatry in palliative medicine; Oxford University Press: Oxford, 2009.

(38)

Amoah, C. F. The Central Importance of Spirituality in Palliative Care. International Journal of Palliative Nursing 2011, 17 (7), 353–358. https://doi.org/10.12968/ijpn.2011.17.7.353.

(39)

Wynne, Lianne1 (NURSE) Lianne.Wynne@clatterbridgecc.nhs.uk. Spiritual Care at the End of Life. Nursing Standard 2013, 28 (2), 41–45.

(40)

Byock, I. R. When Suffering Persists. Journal of Palliative Care 10 (2), 8–13.

(41)

The Nature of Suffering and the Nature of Opportunity at the End-of-Life. Clinics in geriatric medicine.

(42)

Cassell, E. The Nature of Suffering and the Goals of Medicine. In The social medicine reader. Vol. 1, Patients, doctors and illness; Duke University Press: Durham, N.C., 2005.

(43)

Krikorian, AliciaLimonero, Joaquin T. An Integrated View of Suffering in Palliative Care. Journal of Palliative Care No. 1, 41–49.

(44)

Spirituality, Suffering and Dementia.

(45)

Pasman, H. R. W.; Rurup, M. L.; Willems, D. L.; Onwuteaka-Philipsen, B. D. Concept of Unbearable Suffering in Context of Ungranted Requests for Euthanasia: Qualitative Interviews with Patients and Physicians. BMJ 2009, 339 (nov16 1), b4362–b4362. https://doi.org/10.1136/bmj.b4362.

(46)

Back, A. L.; Rushton, C. H.; Kaszniak, A. W.; Halifax, J. S. "Why Are We Doing This?”: Clinician Helplessness in the Face of Suffering. Journal of Palliative Medicine 2015, 18 (1), 26–30. https://doi.org/10.1089/jpm.2014.0115.

(47)

Urquhart, P. Issues of Suffering in Palliative Care. International Journal of Palliative Nursing 1999, 5 (1), 35–39. https://doi.org/10.12968/ijpn.1999.5.1.9929.

(48)

Cassell, E. J. Diagnosing Suffering: A Perspective. Annals of Internal Medicine 1999, 131 (7).

(49)

Andershed, Birgitta1 birgitta.andershed@hi.oru.se. Relatives in End-of-Life Care – Part 1: A Systematic Review of the Literature the Five Last Years, January 1999–February 2004. Journal of Clinical Nursing 2006, 15 (9), 1158–1169.

(50)

Chur-Hansen, A.; Zambrano, S. C.; Crawford, G. B. Furry and Feathered Family Members--A Critical Review of Their Role in Palliative Care. American Journal of Hospice and Palliative Medicine 2014, 31 (6), 672–677. https://doi.org/10.1177/1049909113497084.

(51)

Gaudio, F. D.; Zaider, T. I.; Brier, M.; Kissane, D. W. Challenges in Providing Family-Centered Support to Families in Palliative Care. Palliative Medicine 2012, 26 (8), 1025–1033. https://doi.org/10.1177/0269216311426919.

(52)

Duggleby, W.; Holtslander, L.; Kylma, J.; Duncan, V.; Hammond, C.; Williams, A. Metasynthesis of the Hope Experience of Family Caregivers of Persons With Chronic Illness. Qualitative Health Research 2010, 20 (2), 148–158. https://doi.org/10.1177/1049732309358329.

(53)

Gallagher, R.; Krawczyk, M. Family Members’ Perceptions of End-of-Life Care across Diverse Locations of Care. BMC Palliative Care 2013, 12 (1). https://doi.org/10.1186/1472-684X-12-25.

(54)

Hudson, Peter., Hayman-White, Karla., Aranda,Sanchia., Kristjanson, Linda. Predicting Family Caregiver Psychosocial Functioning in Palliative Care. Journal of Palliative Care No. 3, 133–140.

(55)

Lederberg, M. S. The Family of the Cancer Patient. In Psycho-oncology; Oxford University Press: New York, 1998.

(56)

J. Jacobs; J. Ostroff. Family Therapy: A Systems Approach to Cancer Care. In Psycho-oncology; Oxford University Press: New York, 1998.

(57)

McNamara, B.; Rosenwax, L. Which Carers of Family Members at the End of Life Need More Support from Health Services and Why? Social Science & Medicine 2010, 70 (7), 1035–1041. https://doi.org/10.1016/j.socscimed.2009.11.029.

(58)

Carter, E. A.; McGoldrick, M. The Expanded Family Life Cycle: Individual, Family, and Social Perspectives, 3rd ed.; Allyn and Bacon: Boston, 1999.

(59)

Plant, H. The Impact of Cancer on the Family; Blackwell Science: Osney Mead, Oxford, 2001.

(60)

WALSH, F. The Concept of Family Resilience: Crisis and Challenge. Family Process 1996, 35 (3), 261–281. https://doi.org/10.1111/j.1545-5300.1996.00261.x.

(61)

Harwood, D. Grief in Old Age. Reviews in Clinical Gerontology 2005, 15 (3–4). https://doi.org/10.1017/S0959259806001912.

(62)

Kissane, D. Family Focused Grief Therapy. Bereavement Care 2003, 22 (1), 6–8. https://doi.org/10.1080/02682620308657563.

(63)

Neimeyer, R. A.; Baldwin, S. A.; Gillies, J. Continuing Bonds and Reconstructing Meaning: Mitigating Complications in Bereavement. Death Studies 2006, 30 (8), 715–738. https://doi.org/10.1080/07481180600848322.

(64)

Parkes, C. M.; Laungani, P.; Young, B. Help for the Dying and the Bereaved. In Death and bereavement across cultures; Routledge: London, 1997.

(65)

Parkes, C. M. Coping with Loss: Consequences and Implications for Care. International Journal of Palliative Nursing 1999, 5 (5), 250–254. https://doi.org/10.12968/ijpn.1999.5.5.8966.

(66)

Stroebe, M. S.; Folkman, S.; Hansson, R. O.; Schut, H. The Prediction of Bereavement Outcome: Development of an Integrative Risk Factor Framework. Social Science & Medicine 2006, 63 (9), 2440–2451. https://doi.org/10.1016/j.socscimed.2006.06.012.

(67)

Klass, D.; Silverman, P. R.; Nickman, S. L. Continuing Bonds: New Understandings of Grief; Taylor & Francis: Washington, DC, 1996; Vol. Series in death education, aging, and health care.

(68)

Cort, Elizabeth1Monroe, Barbara1Oliviere, David1. Couples in Palliative Care. Sexual & Relationship Therapy 2004, 19 (3), 337–354.

(69)

Hordern, A. J.; Street, A. F. Constructions of Sexuality and Intimacy after Cancer: Patient and Health Professional Perspectives. Social Science & Medicine 2007, 64 (8), 1704–1718. https://doi.org/10.1016/j.socscimed.2006.12.012.

(70)

Lemieux, Laurie1 llemieux@ucalgary.caKaiser, Stefanie2Pereira, Jose3Meadows, Lynn M.4. Sexuality in Palliative Care: Patient Perspectives. Palliative Medicine 2004, 18 (7), 630–637.

(71)

Stead, M. L.; Brown, J. M.; Fallowfield, L.; Selby, P. Lack of Communication between Healthcare Professionals and Women with Ovarian Cancer about Sexual Issues. British Journal of Cancer 2003, 88 (5), 666–671. https://doi.org/10.1038/sj.bjc.6600799.

(72)

Steginga S.K., Occhipinti S., Dunn J., Gardiner R.A., Heathcote P., Yaxley J. The Supportive Care Needs of Men with Prostate Cancer (2000). Psycho‐Oncology 2001, 10 (1), 66–75. https://doi.org/10.1002/1099-1611(200101/02)10:1<66::AID-PON493>3.0.CO;2-Z.

(73)

White Craig A. Body Image Dimensions and Cancer: A Heuristic Cognitive Behavioural Model. Psycho‐Oncology 2000, 9 (3), 183–192. https://doi.org/10.1002/1099-1611(200005/06)9:3<183::AID-PON446>3.0.CO;2-L.

(74)

Rice, A. M. Sexuality in Cancer and Palliative Care 2: Exploring the Issues. International Journal of Palliative Nursing 2000, 6 (9), 448–453. https://doi.org/10.12968/ijpn.2000.6.9.9057.

(75)

Aranda, S. Silent Voices, Hidden Practices: Exploring Undiscovered Aspects of Cancer Nursing. International Journal of Palliative Nursing 2001, 7 (4), 178–185. https://doi.org/10.12968/ijpn.2001.7.4.9034.

(76)

Figley, C. R.; Huggard, P.; Rees, C. E.; EBSCOhost. First Do No Self Harm: Understanding and Promoting Physician Stress Resilience; Oxford University Press: Oxford, 2013.

(77)

Najjar, N.; Davis, L. W.; Beck-Coon, K.; Carney Doebbeling, C. Compassion Fatigue: A Review of the Research to Date and Relevance to Cancer-Care Providers. Journal of Health Psychology 2009, 14 (2), 267–277. https://doi.org/10.1177/1359105308100211.

(78)

A Systematic Review of the Measurement of Compassion Fatigue, Vicarious Trauma and Secondary Traumatic Stress in Physicians.

(79)

Compassion Fatigue and Burnout | CJON.

(80)

Showalter, S. E. Compassion Fatigue: What Is It? Why Does It Matter? Recognizing the Symptoms, Acknowledging the Impact, Developing the Tools to Prevent Compassion Fatigue, and Strengthen the Professional Already Suffering From the Effects. American Journal of Hospice and Palliative Medicine 2010, 27 (4), 239–242. https://doi.org/10.1177/1049909109354096.

(81)

Barnard, D. Crossing over: Narratives of Palliative Care; Oxford University Press: Oxford, 2000.