Bibliography for POPLPRAC 720 Psychosocial Issues in Palliative Care BETA

1.

Rousseau PC. No One Knew. Journal of Palliative Medicine. 2014 Jul;17(7):861–2.

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Cooley C, Aranda S. Providing total patient care: the power of reflection. International Journal of Palliative Nursing [Internet]. 2005 Dec;11(12):608–608. Available from: http://www.magonlinelibrary.com.ezproxy.auckland.ac.nz/doi/pdf/10.12968/ijpn.2005.11.12.20225

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Hoffman RD. Buddha in room eight. Patient Education and Counseling. 2012 Jul;88(1):2–3.

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Botti, Mari RN, RM, BN, PhD, MRCNA. Barriers in Providing Psychosocial Support for Patients With Cancer. Cancer Nursing [Internet]. 29(4):309–16. Available from: http://ovidsp.ovid.com.ezproxy.auckland.ac.nz/ovidweb.cgi?T=JS&CSC=Y&NEWS=N&PAGE=fulltext&AN=00002820-200607000-00010&LSLINK=80&D=ovft

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Harding, Richard1List, Sally2Epiphaniou, Eleni1Jones, Hannah1. How can informal caregivers in cancer and palliative care be supported? An updated systematic literature review of interventions and their effectiveness. Palliative Medicine [Internet]. 2012;26(1):7–22. Available from: http://ezproxy.auckland.ac.nz/login?url=http://search.ebscohost.com/login.aspx?direct=true&db=aph&AN=69872797&site=ehost-live&scope=site

6.

Samuels M, Betts J. Crossing the threshold from description to deconstruction and reconstruction: using self‐assessment to deepen reflection. Reflective Practice. 2007 May;8(2):269–83.

7.

Spotlight on Palliative Care beyond cancer. Available from: http://www.jstor.org.ezproxy.auckland.ac.nz/stable/25738249

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Hanks GWC. Oxford textbook of palliative medicine. 4th ed. Oxford: Oxford University Press; 2009.

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Yedidia MJ, MacGregor B. Confronting the Prospect of Dying. Journal of Pain and Symptom Management. 2001 Oct;22(4):807–19.

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Broom A, Kirby E, Good P, Wootton J, Adams J. The Troubles of Telling: Managing Communication About the End of Life. Qualitative Health Research. 2014 Feb 1;24(2):151–62.

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Casarett, David J.1,2,3 casarett@mail.med.upenn.eduQuill, Timothy E.1,2,3. ‘I’m Not Ready for Hospice’: Strategies for Timely and Effective Hospice Discussions. Annals of Internal Medicine [Internet]. 2007;146(6). Available from: http://ezproxy.auckland.ac.nz/login?url=http://search.ebscohost.com/login.aspx?direct=true&db=aph&AN=24377897&site=ehost-live&scope=site

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Faulkner A, Maguire P. Talking to cancer patients and their relatives. Vol. Oxford medical publications. Oxford: Oxford University Press; 1994.

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Fallowfield, LJ1Jenkins, VA2Beveridge, HA3. Truth may hurt but deceit hurts more: communication in palliative care. Palliative Medicine [Internet]. 2002;16(4):297–303. Available from: http://ezproxy.auckland.ac.nz/login?url=http://search.ebscohost.com/login.aspx?direct=true&db=aph&AN=6978408&site=ehost-live&scope=site

14.

Hawken S. REBELS: An approach to communication challenges in the consultation [Internet]. Vol. 35, The New Zealand family physician. 2008. p. 274–7. Available from: https://web.archive.org/web/20130207141019/http://rnzcgp.org.nz/assets/documents/Publications/Archive-NZFP/Aug-2008-NZFP-Vol-35-No-4/HawkenAug08.pdf

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Imam, Towhid. The Conversation. Journal of Palliative Medicine [Internet]. 2015;18(2):195–6. Available from: https://doi.org/10.1089/jpm.2014.0214

16.

Kirk, Peter clinical professor (family medicine and palliative care)1. What do patients receiving palliative care for cancer and their families want to be told? A Canadian and Australian qualitative study. BMJ [Internet]. 5AD;328(7452):1343–9. Available from: http://www.jstor.org.ezproxy.auckland.ac.nz/stable/41707902

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McCarthy DM, Waite KR, Curtis LM, Engel KG, Baker DW, Wolf MS. What Did the Doctor Say? Health Literacy and Recall of Medical Instructions. Medical Care. 2012 Apr;50(4):277–82.

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Maguire P, Pitceathly C. Managing the difficult consultation. Clinical Medicine. 2003 Nov 1;3(6):532–7.

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Maguire P, Pitceathly C. Managing the difficult consultation. Clinical Medicine. 2003 Nov 1;3(6):532–7.

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Zapka, Jane G. ScD. End-of-life Communication and Hospital Nurses: An Educational Pilot. The Journal of Cardiovascular Nursing [Internet]. 21(3):223–31. Available from: http://ovidsp.ovid.com.ezproxy.auckland.ac.nz/ovidweb.cgi?T=JS&CSC=Y&NEWS=N&PAGE=fulltext&AN=00005082-200605000-00011&LSLINK=80&D=ovft

21.

Miller, Linda. Effective communication with older people. Nursing Standard [Internet]. (9):45–50. Available from: http://search.proquest.com.ezproxy.auckland.ac.nz/docview/219811909?accountid=8424

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What do you want, sorry? Talking about end of life care for people with dementia | EAPC Blog [Internet]. Available from: https://eapcnet.wordpress.com/2013/07/21/what-do-you-want-sorry-talking-about-end-of-life-care-for-people-with-dementia/

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Amoah CF. The central importance of spirituality in palliative care. International Journal of Palliative Nursing [Internet]. 2011 Jul;17(7):353–8. Available from: http://dx.doi.org.ezproxy.auckland.ac.nz/10.12968/ijpn.2011.17.7.353

24.

Back, Anthony L.1Rushton, Cynda H.2Kaszniak, Alfred W.3Halifax, Joan S.4. ‘Why Are We Doing This?’: Clinician Helplessness in the Face of Suffering. Journal of Palliative Medicine [Internet]. 2015;18(1):26–30. Available from: https://doi.org/10.1089/jpm.2014.0115

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Grant L, Murray SA, Sheikh A. Spiritual dimensions of dying in pluralist societies. BMJ. 2010 Sep 16;341(sep16 2):c4859–c4859.

26.

M. Buchholz W. Doctor Chaplain, can you help me? Journal of Palliative Care & Medicine. 2014;04(05).

27.

Chochinov HM. Dignity and the essence of medicine: the A, B, C, and D of dignity conserving care. BMJ. 2007 Jul 28;335(7612):184–7.

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Chochinov, Harvey Max1 harvey.chochinov@cancercare.mb.caCann, Beverley J.2. Interventions to Enhance the Spiritual Aspects of Dying. Journal of Palliative Medicine [Internet]. 2005;8. Available from: http://ezproxy.auckland.ac.nz/login?url=http://search.ebscohost.com/login.aspx?direct=true&db=aph&AN=19902698&site=ehost-live&scope=site

29.

Chrash M, Mulich B, Patton CM. The APN role in holistic assessment and integration of spiritual assessment for advance care planning. Journal of the American Academy of Nurse Practitioners. 2011 Oct;23(10):530–6.

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Daaleman TP, Usher BM, Williams SW, Rawlings J, Hanson LC. An Exploratory Study of Spiritual Care at the End of Life. The Annals of Family Medicine. 2008 Sep 1;6(5):406–11.

31.

Dein S, Stygall J. Does being religious help or hinder coping with chronic illness? A critical literature review. Palliative Medicine. 1997 Jul 1;11(4):291–8.

32.

Egan R, MacLeod R, Jaye C, McGee R, Baxter J, Herbison P. What is spirituality? Evidence from a New Zealand hospice study. Mortality. 2011 Nov;16(4):307–24.

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Hall S, Edmonds P, Harding R, Chochinov H, Higginson IJ. Assessing the feasibility, acceptability and potential effectiveness of Dignity Therapy for people with advanced cancer referred to a hospital-based palliative care team: Study protocol. BMC Palliative Care. 2009;8(1).

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Harrington A. A Beginning Understanding of Caregivers’ Spiritual Needs When Relinquishing a Loved One to a Palliative Care Setting. Journal of Religion, Spirituality & Aging. 2012 Jan;24(1–2):131–45.

35.

Kearney M. A place of healing: working with nature & soul at the end of life. New Orleans, La: Spring Journal Books; 2009.

36.

Mount, Balfour1 balfour.mount@mcgill.ca. Healing and palliative care: charting our way forward. Palliative Medicine [Internet]. 2003;17(8):657–8. Available from: http://ezproxy.auckland.ac.nz/login?url=http://search.ebscohost.com/login.aspx?direct=true&db=aph&AN=11620175&site=ehost-live&scope=site

37.

Puchalski C. Spiritual Issues in Palliative Care. In: Handbook of psychiatry in palliative medicine. 2nd ed. Oxford: Oxford University Press; 2009.

38.

Amoah CF. The central importance of spirituality in palliative care. International Journal of Palliative Nursing. 2011 Jul;17(7):353–8.

39.

Wynne, Lianne1 (NURSE) Lianne.Wynne@clatterbridgecc.nhs.uk. Spiritual care at the end of life. Nursing Standard [Internet]. 2013;28(2):41–5. Available from: http://ezproxy.auckland.ac.nz/login?url=http://search.ebscohost.com/login.aspx?direct=true&db=aph&AN=90326067&site=ehost-live&scope=site

40.

Byock IR. When suffering persists. Journal of Palliative Care. 10(2):8–13.

41.

The nature of suffering and the nature of opportunity at the end-of-life. Clinics in geriatric medicine.

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Cassell E. The nature of suffering and the goals of medicine. In: The social medicine reader Vol 1, Patients, doctors and illness. 2nd ed. Durham, N.C.: Duke University Press; 2005.

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Krikorian, AliciaLimonero, Joaquin T. An Integrated View of Suffering in Palliative Care. Journal of Palliative Care [Internet]. (1):41–9. Available from: http://search.proquest.com.ezproxy.auckland.ac.nz/docview/1000455752?accountid=8424

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Spirituality, suffering and dementia. Available from: http://www.nathaniel.org.nz/euthanasia/16-bioethical-issues/bioethics-at-the-end-of-life/134-spirituality-suffering-and-dementia

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Pasman HRW, Rurup ML, Willems DL, Onwuteaka-Philipsen BD. Concept of unbearable suffering in context of ungranted requests for euthanasia: qualitative interviews with patients and physicians. BMJ. 2009 Nov 16;339(nov16 1):b4362–b4362.

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Back AL, Rushton CH, Kaszniak AW, Halifax JS. "Why Are We Doing This?”: Clinician Helplessness in the Face of Suffering. Journal of Palliative Medicine. 2015 Jan;18(1):26–30.

47.

Urquhart P. Issues of suffering in palliative care. International Journal of Palliative Nursing. 1999 Jan;5(1):35–9.

48.

Cassell EJ. Diagnosing Suffering: A Perspective. Annals of Internal Medicine [Internet]. 1999 Oct 5;131(7). Available from: https://www.acpjournals.org/doi/10.7326/0003-4819-131-7-199910050-00009

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Andershed, Birgitta1 birgitta.andershed@hi.oru.se. Relatives in end-of-life care – part 1: a systematic review of the literature the five last years, January 1999–February 2004. Journal of Clinical Nursing [Internet]. 2006;15(9):1158–69. Available from: http://ezproxy.auckland.ac.nz/login?url=http://search.ebscohost.com/login.aspx?direct=true&db=aph&AN=21870171&site=ehost-live&scope=site

50.

Chur-Hansen A, Zambrano SC, Crawford GB. Furry and Feathered Family Members--A Critical Review of Their Role in Palliative Care. American Journal of Hospice and Palliative Medicine. 2014 Sep 1;31(6):672–7.

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Gaudio FD, Zaider TI, Brier M, Kissane DW. Challenges in providing family-centered support to families in palliative care. Palliative Medicine. 2012 Dec 1;26(8):1025–33.

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Duggleby W, Holtslander L, Kylma J, Duncan V, Hammond C, Williams A. Metasynthesis of the Hope Experience of Family Caregivers of Persons With Chronic Illness. Qualitative Health Research [Internet]. 2010 Feb 1;20(2):148–58. Available from: https://journals.sagepub.com/doi/10.1177/1049732309358329

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Gallagher R, Krawczyk M. Family members’ perceptions of end-of-life care across diverse locations of care. BMC Palliative Care. 2013;12(1).

54.

Hudson, Peter., Hayman-White, Karla., Aranda,Sanchia., Kristjanson, Linda. Predicting Family Caregiver Psychosocial Functioning in Palliative Care. Journal of Palliative Care [Internet]. (3):133–40. Available from: http://search.proquest.com.ezproxy.auckland.ac.nz/docview/214199194

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Lederberg MS. The family of the cancer patient. In: Psycho-oncology. New York: Oxford University Press; 1998.

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J. Jacobs, J. Ostroff. Family Therapy: A systems approach to cancer care. In: Psycho-oncology. New York: Oxford University Press; 1998.

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McNamara B, Rosenwax L. Which carers of family members at the end of life need more support from health services and why? Social Science & Medicine. 2010 Apr;70(7):1035–41.

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Carter EA, McGoldrick M. The expanded family life cycle: individual, family, and social perspectives. 3rd ed. Boston: Allyn and Bacon; 1999.

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Plant, H. The impact of cancer on the family. In Osney Mead, Oxford: Blackwell Science; 2001. Available from: https://site.ebrary.com/lib/auckland/reader.action?ppg=148&docID=10346043&tm=1452551322602

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WALSH F. The Concept of Family Resilience: Crisis and Challenge. Family Process. 1996 Sep;35(3):261–81.

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Harwood D. Grief in old age. Reviews in Clinical Gerontology. 2005 Aug;15(3–4).

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Kissane D. Family focused grief therapy. Bereavement Care. 2003 Mar;22(1):6–8.

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Parkes CM. Coping with loss: consequences and implications for care. International Journal of Palliative Nursing. 1999 Sep;5(5):250–4.

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Cort, Elizabeth1Monroe, Barbara1Oliviere, David1. Couples in palliative care. Sexual & Relationship Therapy [Internet]. 2004;19(3):337–54. Available from: http://ezproxy.auckland.ac.nz/login?url=http://search.ebscohost.com/login.aspx?direct=true&db=aph&AN=14010868&site=ehost-live&scope=site

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Rice AM. Sexuality in cancer and palliative care 2: exploring the issues. International Journal of Palliative Nursing. 2000 Oct;6(9):448–53.

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Aranda S. Silent voices, hidden practices: exploring undiscovered aspects of cancer nursing. International Journal of Palliative Nursing. 2001 Apr;7(4):178–85.

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Figley CR, Huggard P, Rees CE, EBSCOhost. First do no self harm: understanding and promoting physician stress resilience [Internet]. Oxford: Oxford University Press; 2013. Available from: http://search.ebscohost.com/login.aspx?direct=true&scope=site&db=nlebk&db=nlabk&AN=1201320

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Najjar N, Davis LW, Beck-Coon K, Carney Doebbeling C. Compassion Fatigue: A Review of the Research to Date and Relevance to Cancer-care Providers. Journal of Health Psychology. 2009 Mar 1;14(2):267–77.

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A systematic review of the measurement of compassion fatigue, vicarious trauma and secondary traumatic stress in physicians. Available from: http://www.massey.ac.nz.ezproxy.auckland.ac.nz/~trauma/issues/2013-1/AJDTS_2013-1_Nimmo.pdf

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Showalter SE. Compassion Fatigue: What Is It? Why Does It Matter? Recognizing the Symptoms, Acknowledging the Impact, Developing the Tools to Prevent Compassion Fatigue, and Strengthen the Professional Already Suffering From the Effects. American Journal of Hospice and Palliative Medicine. 2010 Jun 1;27(4):239–42.

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Barnard D. Crossing over: narratives of palliative care [Internet]. Oxford: Oxford University Press; 2000. Available from: https://site.ebrary.com/lib/auckland/detail.action?docID=10375342