‘A systematic review of the measurement of compassion fatigue, vicarious trauma and secondary traumatic stress in physicians’ (no date). Available at: http://www.massey.ac.nz.ezproxy.auckland.ac.nz/~trauma/issues/2013-1/AJDTS_2013-1_Nimmo.pdf.
Amoah, C.F. (2011a) ‘The central importance of spirituality in palliative care’, International Journal of Palliative Nursing, 17(7), pp. 353–358. Available at: https://doi.org/10.12968/ijpn.2011.17.7.353.
Amoah, C.F. (2011b) ‘The central importance of spirituality in palliative care’, International Journal of Palliative Nursing, 17(7), pp. 353–358. Available at: https://doi.org/10.12968/ijpn.2011.17.7.353.
Andershed, Birgitta1 birgitta.andershed@hi.oru.se (2006) ‘Relatives in end-of-life care – part 1: a systematic review of the literature the five last years, January 1999–February 2004.’, Journal of Clinical Nursing, 15(9), pp. 1158–1169. Available at: http://ezproxy.auckland.ac.nz/login?url=http://search.ebscohost.com/login.aspx?direct=true&db=aph&AN=21870171&site=ehost-live&scope=site.
Aranda, S. (2001) ‘Silent voices, hidden practices: exploring undiscovered aspects of cancer nursing’, International Journal of Palliative Nursing, 7(4), pp. 178–185. Available at: https://doi.org/10.12968/ijpn.2001.7.4.9034.
Back, A.L. et al. (2015) ‘"Why Are We Doing This?”: Clinician Helplessness in the Face of Suffering’, Journal of Palliative Medicine, 18(1), pp. 26–30. Available at: https://doi.org/10.1089/jpm.2014.0115.
Back, Anthony L.1Rushton, Cynda H.2Kaszniak, Alfred W.3Halifax, Joan S.4 (2015) ‘“Why Are We Doing This?”: Clinician Helplessness in the Face of Suffering.’, Journal of Palliative Medicine, 18(1), pp. 26–30. Available at: https://doi.org/10.1089/jpm.2014.0115.
Barnard, D. (2000) Crossing over: narratives of palliative care. Oxford: Oxford University Press. Available at: https://site.ebrary.com/lib/auckland/detail.action?docID=10375342.
Botti, Mari RN, RM, BN, PhD, MRCNA (no date) ‘Barriers in Providing Psychosocial Support for Patients With Cancer’, Cancer Nursing, 29(4), pp. 309–316. Available at: http://ovidsp.ovid.com.ezproxy.auckland.ac.nz/ovidweb.cgi?T=JS&CSC=Y&NEWS=N&PAGE=fulltext&AN=00002820-200607000-00010&LSLINK=80&D=ovft.
Broom, A. et al. (2014) ‘The Troubles of Telling: Managing Communication About the End of Life’, Qualitative Health Research, 24(2), pp. 151–162. Available at: https://doi.org/10.1177/1049732313519709.
Byock, I.R. (no date) ‘When suffering persists’, Journal of Palliative Care, 10(2), pp. 8–13.
Carter, E.A. and McGoldrick, M. (1999) The expanded family life cycle: individual, family, and social perspectives. 3rd ed. Boston: Allyn and Bacon.
Casarett, David J.1,2,3 casarett@mail.med.upenn.eduQuill, Timothy E.1,2,3 (2007) ‘“I’m Not Ready for Hospice”: Strategies for Timely and Effective Hospice Discussions.’, Annals of Internal Medicine, 146(6). Available at: http://ezproxy.auckland.ac.nz/login?url=http://search.ebscohost.com/login.aspx?direct=true&db=aph&AN=24377897&site=ehost-live&scope=site.
Cassell, E. (2005) ‘The nature of suffering and the goals of medicine’, in The social medicine reader. Vol. 1, Patients, doctors and illness. 2nd ed. Durham, N.C.: Duke University Press.
Cassell, E.J. (1999) ‘Diagnosing Suffering: A Perspective’, Annals of Internal Medicine, 131(7). Available at: https://www.acpjournals.org/doi/10.7326/0003-4819-131-7-199910050-00009.
Chochinov, Harvey Max1 harvey.chochinov@cancercare.mb.caCann, Beverley J.2 (2005) ‘Interventions to Enhance the Spiritual Aspects of Dying.’, Journal of Palliative Medicine, 8. Available at: http://ezproxy.auckland.ac.nz/login?url=http://search.ebscohost.com/login.aspx?direct=true&db=aph&AN=19902698&site=ehost-live&scope=site.
Chochinov, H.M. (2007) ‘Dignity and the essence of medicine: the A, B, C, and D of dignity conserving care’, BMJ, 335(7612), pp. 184–187. Available at: https://doi.org/10.1136/bmj.39244.650926.47.
Chrash, M., Mulich, B. and Patton, C.M. (2011) ‘The APN role in holistic assessment and integration of spiritual assessment for advance care planning’, Journal of the American Academy of Nurse Practitioners, 23(10), pp. 530–536. Available at: https://doi.org/10.1111/j.1745-7599.2011.00644.x.
Chur-Hansen, A., Zambrano, S.C. and Crawford, G.B. (2014) ‘Furry and Feathered Family Members--A Critical Review of Their Role in Palliative Care’, American Journal of Hospice and Palliative Medicine, 31(6), pp. 672–677. Available at: https://doi.org/10.1177/1049909113497084.
‘Compassion Fatigue and Burnout | CJON’ (no date). Available at: https://cjon.ons.org/cjon/14/5/compassion-fatigue-and-burnout.
Cooley, C. and Aranda, S. (2005) ‘Providing total patient care: the power of reflection’, International Journal of Palliative Nursing, 11(12), pp. 608–608. Available at: https://doi.org/10.12968/ijpn.2005.11.12.20225.
Cort, Elizabeth1Monroe, Barbara1Oliviere, David1 (2004) ‘Couples in palliative care.’, Sexual & Relationship Therapy, 19(3), pp. 337–354. Available at: http://ezproxy.auckland.ac.nz/login?url=http://search.ebscohost.com/login.aspx?direct=true&db=aph&AN=14010868&site=ehost-live&scope=site.
Daaleman, T.P. et al. (2008) ‘An Exploratory Study of Spiritual Care at the End of Life’, The Annals of Family Medicine, 6(5), pp. 406–411. Available at: https://doi.org/10.1370/afm.883.
Dein, S. and Stygall, J. (1997) ‘Does being religious help or hinder coping with chronic illness? A critical literature review’, Palliative Medicine, 11(4), pp. 291–298. Available at: https://doi.org/10.1177/026921639701100405.
Duggleby, W. et al. (2010) ‘Metasynthesis of the Hope Experience of Family Caregivers of Persons With Chronic Illness’, Qualitative Health Research, 20(2), pp. 148–158. Available at: https://doi.org/10.1177/1049732309358329.
Egan, R. et al. (2011) ‘What is spirituality? Evidence from a New Zealand hospice study’, Mortality, 16(4), pp. 307–324. Available at: https://doi.org/10.1080/13576275.2011.613267.
Fallowfield, LJ1Jenkins, VA2Beveridge, HA3 (2002) ‘Truth may hurt but deceit hurts more: communication in palliative care.’, Palliative Medicine, 16(4), pp. 297–303. Available at: http://ezproxy.auckland.ac.nz/login?url=http://search.ebscohost.com/login.aspx?direct=true&db=aph&AN=6978408&site=ehost-live&scope=site.
Faulkner, A. and Maguire, P. (1994) Talking to cancer patients and their relatives. Oxford: Oxford University Press.
Figley, C.R. et al. (2013) First do no self harm: understanding and promoting physician stress resilience [electronic resource]. Oxford: Oxford University Press. Available at: http://search.ebscohost.com/login.aspx?direct=true&scope=site&db=nlebk&db=nlabk&AN=1201320.
Gallagher, R. and Krawczyk, M. (2013) ‘Family members’ perceptions of end-of-life care across diverse locations of care’, BMC Palliative Care, 12(1). Available at: https://doi.org/10.1186/1472-684X-12-25.
Gaudio, F.D. et al. (2012) ‘Challenges in providing family-centered support to families in palliative care’, Palliative Medicine, 26(8), pp. 1025–1033. Available at: https://doi.org/10.1177/0269216311426919.
Grant, L., Murray, S.A. and Sheikh, A. (2010) ‘Spiritual dimensions of dying in pluralist societies’, BMJ, 341(sep16 2), pp. c4859–c4859. Available at: https://doi.org/10.1136/bmj.c4859.
Hall, S. et al. (2009) ‘Assessing the feasibility, acceptability and potential effectiveness of Dignity Therapy for people with advanced cancer referred to a hospital-based palliative care team: Study protocol’, BMC Palliative Care, 8(1). Available at: https://doi.org/10.1186/1472-684X-8-5.
Hanks, G.W.C. (2009) Oxford textbook of palliative medicine. 4th ed. Oxford: Oxford University Press.
Harding, Richard1List, Sally2Epiphaniou, Eleni1Jones, Hannah1 (2012) ‘How can informal caregivers in cancer and palliative care be supported? An updated systematic literature review of interventions and their effectiveness.’, Palliative Medicine, 26(1), pp. 7–22. Available at: http://ezproxy.auckland.ac.nz/login?url=http://search.ebscohost.com/login.aspx?direct=true&db=aph&AN=69872797&site=ehost-live&scope=site.
Harrington, A. (2012) ‘A Beginning Understanding of Caregivers’ Spiritual Needs When Relinquishing a Loved One to a Palliative Care Setting’, Journal of Religion, Spirituality & Aging, 24(1–2), pp. 131–145. Available at: https://doi.org/10.1080/15528030.2012.633055.
Harwood, D. (2005) ‘Grief in old age’, Reviews in Clinical Gerontology, 15(3–4). Available at: https://doi.org/10.1017/S0959259806001912.
Hawken, S. (2008) ‘REBELS: An approach to communication challenges in the consultation’, The New Zealand family physician. Available at: https://web.archive.org/web/20130207141019/http://rnzcgp.org.nz/assets/documents/Publications/Archive-NZFP/Aug-2008-NZFP-Vol-35-No-4/HawkenAug08.pdf.
Hoffman, R.D. (2012) ‘Buddha in room eight’, Patient Education and Counseling, 88(1), pp. 2–3. Available at: https://doi.org/10.1016/j.pec.2011.12.013.
Hordern, A.J. and Street, A.F. (2007) ‘Constructions of sexuality and intimacy after cancer: Patient and health professional perspectives’, Social Science & Medicine, 64(8), pp. 1704–1718. Available at: https://doi.org/10.1016/j.socscimed.2006.12.012.
Hudson, Peter., Hayman-White, Karla., Aranda,Sanchia., Kristjanson, Linda. (no date) ‘Predicting Family Caregiver Psychosocial Functioning in Palliative Care’, Journal of Palliative Care, (3), pp. 133–40. Available at: http://search.proquest.com.ezproxy.auckland.ac.nz/docview/214199194.
Imam, Towhid (2015) ‘The Conversation.’, Journal of Palliative Medicine, 18(2), pp. 195–196. Available at: https://doi.org/10.1089/jpm.2014.0214.
J. Jacobs and J. Ostroff (1998) ‘Family Therapy: A systems approach to cancer care’, in Psycho-oncology. New York: Oxford University Press.
Kearney, M. (2009) A place of healing: working with nature & soul at the end of life. New Orleans, La: Spring Journal Books.
Kirk, Peter clinical professor (family medicine and palliative care)1 (5AD) ‘What do patients receiving palliative care for cancer and their families want to be told? A Canadian and Australian qualitative study’, BMJ, 328(7452), pp. 1343–1349. Available at: http://www.jstor.org.ezproxy.auckland.ac.nz/stable/41707902.
Kissane, D. (2003) ‘Family focused grief therapy’, Bereavement Care, 22(1), pp. 6–8. Available at: https://doi.org/10.1080/02682620308657563.
Klass, D., Silverman, P.R. and Nickman, S.L. (1996) Continuing bonds: new understandings of grief. Washington, DC: Taylor & Francis. Available at: https://ebookcentral.proquest.com/lib/auckland/reader.action?docID=1688972&ppg=26.
Krikorian, AliciaLimonero, Joaquin T (no date) ‘An Integrated View of Suffering in Palliative Care’, Journal of Palliative Care, (1), pp. 41–9. Available at: http://search.proquest.com.ezproxy.auckland.ac.nz/docview/1000455752?accountid=8424.
Lederberg, M.S. (1998) ‘The family of the cancer patient.’, in Psycho-oncology. New York: Oxford University Press.
Lemieux, Laurie1 llemieux@ucalgary.caKaiser, Stefanie2Pereira, Jose3Meadows, Lynn M.4 (2004) ‘Sexuality in palliative care: patient perspectives.’, Palliative Medicine, 18(7), pp. 630–637. Available at: https://search.ebscohost.com/login.aspx?direct=true&db=aph&AN=14797498&site=ehost-live&scope=site.
M. Buchholz, W. (2014) ‘Doctor Chaplain, can you help me?’, Journal of Palliative Care & Medicine, 04(05). Available at: https://doi.org/10.4172/2165-7386.1000187.
Maguire, P. and Pitceathly, C. (2003a) ‘Managing the difficult consultation’, Clinical Medicine, 3(6), pp. 532–537. Available at: https://doi.org/10.7861/clinmedicine.3-6-532.
Maguire, P. and Pitceathly, C. (2003b) ‘Managing the difficult consultation’, Clinical Medicine, 3(6), pp. 532–537. Available at: https://doi.org/10.7861/clinmedicine.3-6-532.
McCarthy, D.M. et al. (2012) ‘What Did the Doctor Say? Health Literacy and Recall of Medical Instructions’, Medical Care, 50(4), pp. 277–282. Available at: https://doi.org/10.1097/MLR.0b013e318241e8e1.
McNamara, B. and Rosenwax, L. (2010) ‘Which carers of family members at the end of life need more support from health services and why?’, Social Science & Medicine, 70(7), pp. 1035–1041. Available at: https://doi.org/10.1016/j.socscimed.2009.11.029.
Miller, Linda (no date) ‘Effective communication with older people’, Nursing Standard, (9), pp. 45–50. Available at: http://search.proquest.com.ezproxy.auckland.ac.nz/docview/219811909?accountid=8424.
Mount, Balfour1 balfour.mount@mcgill.ca (2003) ‘Healing and palliative care: charting our way forward.’, Palliative Medicine, 17(8), pp. 657–658. Available at: http://ezproxy.auckland.ac.nz/login?url=http://search.ebscohost.com/login.aspx?direct=true&db=aph&AN=11620175&site=ehost-live&scope=site.
Najjar, N. et al. (2009) ‘Compassion Fatigue: A Review of the Research to Date and Relevance to Cancer-care Providers’, Journal of Health Psychology, 14(2), pp. 267–277. Available at: https://doi.org/10.1177/1359105308100211.
Neimeyer, R.A., Baldwin, S.A. and Gillies, J. (2006) ‘Continuing Bonds and Reconstructing Meaning: Mitigating Complications in Bereavement’, Death Studies, 30(8), pp. 715–738. Available at: https://doi.org/10.1080/07481180600848322.
Parkes, C.M. (1999) ‘Coping with loss: consequences and implications for care’, International Journal of Palliative Nursing, 5(5), pp. 250–254. Available at: https://doi.org/10.12968/ijpn.1999.5.5.8966.
Parkes, C.M., Laungani, P. and Young, B. (1997) ‘Help for the dying and the bereaved’, in Death and bereavement across cultures. London: Routledge. Available at: https://site.ebrary.com/lib/auckland/reader.action?docID=10062974&ppg=215.
Pasman, H.R.W. et al. (2009) ‘Concept of unbearable suffering in context of ungranted requests for euthanasia: qualitative interviews with patients and physicians’, BMJ, 339(nov16 1), pp. b4362–b4362. Available at: https://doi.org/10.1136/bmj.b4362.
Plant, H. (2001) ‘The impact of cancer on the family’, in. Osney Mead, Oxford: Blackwell Science. Available at: https://site.ebrary.com/lib/auckland/reader.action?ppg=148&docID=10346043&tm=1452551322602.
Puchalski, C. (2009) ‘Spiritual Issues in Palliative Care’, in Handbook of psychiatry in palliative medicine. 2nd ed. Oxford: Oxford University Press.
Rice, A.M. (2000) ‘Sexuality in cancer and palliative care 2: exploring the issues’, International Journal of Palliative Nursing, 6(9), pp. 448–453. Available at: https://doi.org/10.12968/ijpn.2000.6.9.9057.
Rousseau, P.C. (2014) ‘No One Knew’, Journal of Palliative Medicine, 17(7), pp. 861–862. Available at: https://doi.org/10.1089/jpm.2013.0491.
Samuels, M. and Betts, J. (2007) ‘Crossing the threshold from description to deconstruction and reconstruction: using self‐assessment to deepen reflection’, Reflective Practice, 8(2), pp. 269–283. Available at: https://doi.org/10.1080/14623940701289410.
Showalter, S.E. (2010) ‘Compassion Fatigue: What Is It? Why Does It Matter? Recognizing the Symptoms, Acknowledging the Impact, Developing the Tools to Prevent Compassion Fatigue, and Strengthen the Professional Already Suffering From the Effects’, American Journal of Hospice and Palliative Medicine, 27(4), pp. 239–242. Available at: https://doi.org/10.1177/1049909109354096.
‘Spirituality, suffering and dementia’ (no date). Available at: http://www.nathaniel.org.nz/euthanasia/16-bioethical-issues/bioethics-at-the-end-of-life/134-spirituality-suffering-and-dementia.
‘Spotlight on Palliative Care beyond cancer’ (no date). Available at: http://www.jstor.org.ezproxy.auckland.ac.nz/stable/25738249.
Stead, M.L. et al. (2003) ‘Lack of communication between healthcare professionals and women with ovarian cancer about sexual issues’, British Journal of Cancer, 88(5), pp. 666–671. Available at: https://doi.org/10.1038/sj.bjc.6600799.
Steginga S.K., Occhipinti S., Dunn J., Gardiner R.A., Heathcote P., Yaxley J. (2001) ‘The supportive care needs of men with prostate cancer (2000)’, Psycho‐Oncology, 10(1), pp. 66–75. Available at: https://doi.org/10.1002/1099-1611(200101/02)10:1<66::AID-PON493>3.0.CO;2-Z.
Stroebe, M.S. et al. (2006) ‘The prediction of bereavement outcome: Development of an integrative risk factor framework’, Social Science & Medicine, 63(9), pp. 2440–2451. Available at: https://doi.org/10.1016/j.socscimed.2006.06.012.
‘The nature of suffering and the nature of opportunity at the end-of-life’ (no date) Clinics in geriatric medicine [Preprint].
Urquhart, P. (1999) ‘Issues of suffering in palliative care’, International Journal of Palliative Nursing, 5(1), pp. 35–39. Available at: https://doi.org/10.12968/ijpn.1999.5.1.9929.
WALSH, F. (1996) ‘The Concept of Family Resilience: Crisis and Challenge’, Family Process, 35(3), pp. 261–281. Available at: https://doi.org/10.1111/j.1545-5300.1996.00261.x.
What do you want, sorry? Talking about end of life care for people with dementia | EAPC Blog (no date). Available at: https://eapcnet.wordpress.com/2013/07/21/what-do-you-want-sorry-talking-about-end-of-life-care-for-people-with-dementia/.
White Craig A. (2000) ‘Body image dimensions and cancer: a heuristic cognitive behavioural model’, Psycho‐Oncology, 9(3), pp. 183–192. Available at: https://doi.org/10.1002/1099-1611(200005/06)9:3<183::AID-PON446>3.0.CO;2-L.
Wynne, Lianne1 (NURSE) Lianne.Wynne@clatterbridgecc.nhs.uk (2013) ‘Spiritual care at the end of life.’, Nursing Standard, 28(2), pp. 41–45. Available at: http://ezproxy.auckland.ac.nz/login?url=http://search.ebscohost.com/login.aspx?direct=true&amp;db=aph&amp;AN=90326067&amp;site=ehost-live&amp;scope=site.
Yedidia, M.J. and MacGregor, B. (2001) ‘Confronting the Prospect of Dying’, Journal of Pain and Symptom Management, 22(4), pp. 807–819. Available at: https://doi.org/10.1016/S0885-3924(01)00325-6.
Zapka, Jane G. ScD (no date) ‘End-of-life Communication and Hospital Nurses: An Educational Pilot’, The Journal of Cardiovascular Nursing, 21(3), pp. 223–231. Available at: http://ovidsp.ovid.com.ezproxy.auckland.ac.nz/ovidweb.cgi?T=JS&amp;CSC=Y&amp;NEWS=N&amp;PAGE=fulltext&amp;AN=00005082-200605000-00011&amp;LSLINK=80&amp;D=ovft.