A systematic review of the measurement of compassion fatigue, vicarious trauma and secondary traumatic stress in physicians. (n.d.). http://www.massey.ac.nz.ezproxy.auckland.ac.nz/~trauma/issues/2013-1/AJDTS_2013-1_Nimmo.pdf
Amoah, C. F. (2011a). The central importance of spirituality in palliative care. International Journal of Palliative Nursing, 17(7), 353–358. https://doi.org/10.12968/ijpn.2011.17.7.353
Amoah, C. F. (2011b). The central importance of spirituality in palliative care. International Journal of Palliative Nursing, 17(7), 353–358. https://doi.org/10.12968/ijpn.2011.17.7.353
Andershed, Birgitta1 birgitta.andershed@hi.oru.se. (2006). Relatives in end-of-life care – part 1: a systematic review of the literature the five last years, January 1999–February 2004. Journal of Clinical Nursing, 15(9), 1158–1169. http://ezproxy.auckland.ac.nz/login?url=http://search.ebscohost.com/login.aspx?direct=true&db=aph&AN=21870171&site=ehost-live&scope=site
Aranda, S. (2001). Silent voices, hidden practices: exploring undiscovered aspects of cancer nursing. International Journal of Palliative Nursing, 7(4), 178–185. https://doi.org/10.12968/ijpn.2001.7.4.9034
Back, A. L., Rushton, C. H., Kaszniak, A. W., & Halifax, J. S. (2015). "Why Are We Doing This?”: Clinician Helplessness in the Face of Suffering. Journal of Palliative Medicine, 18(1), 26–30. https://doi.org/10.1089/jpm.2014.0115
Back, Anthony L.1Rushton, Cynda H.2Kaszniak, Alfred W.3Halifax, Joan S.4. (2015). ‘Why Are We Doing This?’: Clinician Helplessness in the Face of Suffering. Journal of Palliative Medicine, 18(1), 26–30. https://doi.org/10.1089/jpm.2014.0115
Barnard, D. (2000). Crossing over: narratives of palliative care. Oxford University Press. https://site.ebrary.com/lib/auckland/detail.action?docID=10375342
Botti, Mari RN, RM, BN, PhD, MRCNA. (n.d.). Barriers in Providing Psychosocial Support for Patients With Cancer. Cancer Nursing, 29(4), 309–316. http://ovidsp.ovid.com.ezproxy.auckland.ac.nz/ovidweb.cgi?T=JS&CSC=Y&NEWS=N&PAGE=fulltext&AN=00002820-200607000-00010&LSLINK=80&D=ovft
Broom, A., Kirby, E., Good, P., Wootton, J., & Adams, J. (2014). The Troubles of Telling: Managing Communication About the End of Life. Qualitative Health Research, 24(2), 151–162. https://doi.org/10.1177/1049732313519709
Byock, I. R. (n.d.). When suffering persists. Journal of Palliative Care, 10(2), 8–13.
Carter, E. A., & McGoldrick, M. (1999). The expanded family life cycle: individual, family, and social perspectives (3rd ed). Allyn and Bacon.
Casarett, David J.1,2,3 casarett@mail.med.upenn.eduQuill, Timothy E.1,2,3. (2007). ‘I’m Not Ready for Hospice’: Strategies for Timely and Effective Hospice Discussions. Annals of Internal Medicine, 146(6). http://ezproxy.auckland.ac.nz/login?url=http://search.ebscohost.com/login.aspx?direct=true&db=aph&AN=24377897&site=ehost-live&scope=site
Cassell, E. (2005). The nature of suffering and the goals of medicine. In The social medicine reader. Vol. 1, Patients, doctors and illness (2nd ed). Duke University Press.
Cassell, E. J. (1999). Diagnosing Suffering: A Perspective. Annals of Internal Medicine, 131(7). https://www.acpjournals.org/doi/10.7326/0003-4819-131-7-199910050-00009
Chochinov, H. M. (2007). Dignity and the essence of medicine: the A, B, C, and D of dignity conserving care. BMJ, 335(7612), 184–187. https://doi.org/10.1136/bmj.39244.650926.47
Chochinov, Harvey Max1 harvey.chochinov@cancercare.mb.caCann, Beverley J.2. (2005). Interventions to Enhance the Spiritual Aspects of Dying. Journal of Palliative Medicine, 8. http://ezproxy.auckland.ac.nz/login?url=http://search.ebscohost.com/login.aspx?direct=true&db=aph&AN=19902698&site=ehost-live&scope=site
Chrash, M., Mulich, B., & Patton, C. M. (2011). The APN role in holistic assessment and integration of spiritual assessment for advance care planning. Journal of the American Academy of Nurse Practitioners, 23(10), 530–536. https://doi.org/10.1111/j.1745-7599.2011.00644.x
Chur-Hansen, A., Zambrano, S. C., & Crawford, G. B. (2014). Furry and Feathered Family Members--A Critical Review of Their Role in Palliative Care. American Journal of Hospice and Palliative Medicine, 31(6), 672–677. https://doi.org/10.1177/1049909113497084
Compassion Fatigue and Burnout | CJON. (n.d.). https://cjon.ons.org/cjon/14/5/compassion-fatigue-and-burnout
Cooley, C., & Aranda, S. (2005). Providing total patient care: the power of reflection. International Journal of Palliative Nursing, 11(12), 608–608. https://doi.org/10.12968/ijpn.2005.11.12.20225
Cort, Elizabeth1Monroe, Barbara1Oliviere, David1. (2004). Couples in palliative care. Sexual & Relationship Therapy, 19(3), 337–354. http://ezproxy.auckland.ac.nz/login?url=http://search.ebscohost.com/login.aspx?direct=true&db=aph&AN=14010868&site=ehost-live&scope=site
Daaleman, T. P., Usher, B. M., Williams, S. W., Rawlings, J., & Hanson, L. C. (2008). An Exploratory Study of Spiritual Care at the End of Life. The Annals of Family Medicine, 6(5), 406–411. https://doi.org/10.1370/afm.883
Dein, S., & Stygall, J. (1997). Does being religious help or hinder coping with chronic illness? A critical literature review. Palliative Medicine, 11(4), 291–298. https://doi.org/10.1177/026921639701100405
Duggleby, W., Holtslander, L., Kylma, J., Duncan, V., Hammond, C., & Williams, A. (2010). Metasynthesis of the Hope Experience of Family Caregivers of Persons With Chronic Illness. Qualitative Health Research, 20(2), 148–158. https://doi.org/10.1177/1049732309358329
Egan, R., MacLeod, R., Jaye, C., McGee, R., Baxter, J., & Herbison, P. (2011). What is spirituality? Evidence from a New Zealand hospice study. Mortality, 16(4), 307–324. https://doi.org/10.1080/13576275.2011.613267
Fallowfield, LJ1Jenkins, VA2Beveridge, HA3. (2002). Truth may hurt but deceit hurts more: communication in palliative care. Palliative Medicine, 16(4), 297–303. http://ezproxy.auckland.ac.nz/login?url=http://search.ebscohost.com/login.aspx?direct=true&db=aph&AN=6978408&site=ehost-live&scope=site
Faulkner, A., & Maguire, P. (1994). Talking to cancer patients and their relatives: Vol. Oxford medical publications. Oxford University Press.
Figley, C. R., Huggard, P., Rees, C. E., & EBSCOhost. (2013). First do no self harm: understanding and promoting physician stress resilience [Electronic resource]. Oxford University Press. http://search.ebscohost.com/login.aspx?direct=true&scope=site&db=nlebk&db=nlabk&AN=1201320
Gallagher, R., & Krawczyk, M. (2013). Family members’ perceptions of end-of-life care across diverse locations of care. BMC Palliative Care, 12(1). https://doi.org/10.1186/1472-684X-12-25
Gaudio, F. D., Zaider, T. I., Brier, M., & Kissane, D. W. (2012). Challenges in providing family-centered support to families in palliative care. Palliative Medicine, 26(8), 1025–1033. https://doi.org/10.1177/0269216311426919
Grant, L., Murray, S. A., & Sheikh, A. (2010). Spiritual dimensions of dying in pluralist societies. BMJ, 341(sep16 2), c4859–c4859. https://doi.org/10.1136/bmj.c4859
Hall, S., Edmonds, P., Harding, R., Chochinov, H., & Higginson, I. J. (2009). Assessing the feasibility, acceptability and potential effectiveness of Dignity Therapy for people with advanced cancer referred to a hospital-based palliative care team: Study protocol. BMC Palliative Care, 8(1). https://doi.org/10.1186/1472-684X-8-5
Hanks, G. W. C. (2009). Oxford textbook of palliative medicine (4th ed). Oxford University Press.
Harding, Richard1List, Sally2Epiphaniou, Eleni1Jones, Hannah1. (2012). How can informal caregivers in cancer and palliative care be supported? An updated systematic literature review of interventions and their effectiveness. Palliative Medicine, 26(1), 7–22. http://ezproxy.auckland.ac.nz/login?url=http://search.ebscohost.com/login.aspx?direct=true&db=aph&AN=69872797&site=ehost-live&scope=site
Harrington, A. (2012). A Beginning Understanding of Caregivers’ Spiritual Needs When Relinquishing a Loved One to a Palliative Care Setting. Journal of Religion, Spirituality & Aging, 24(1–2), 131–145. https://doi.org/10.1080/15528030.2012.633055
Harwood, D. (2005). Grief in old age. Reviews in Clinical Gerontology, 15(3–4). https://doi.org/10.1017/S0959259806001912
Hawken, S. (2008). REBELS: An approach to communication challenges in the consultation. In The New Zealand family physician. (Vol. 35, Issue 4, pp. 274–277). https://web.archive.org/web/20130207141019/http://rnzcgp.org.nz/assets/documents/Publications/Archive-NZFP/Aug-2008-NZFP-Vol-35-No-4/HawkenAug08.pdf
Hoffman, R. D. (2012). Buddha in room eight. Patient Education and Counseling, 88(1), 2–3. https://doi.org/10.1016/j.pec.2011.12.013
Hordern, A. J., & Street, A. F. (2007). Constructions of sexuality and intimacy after cancer: Patient and health professional perspectives. Social Science & Medicine, 64(8), 1704–1718. https://doi.org/10.1016/j.socscimed.2006.12.012
Hudson, Peter., Hayman-White, Karla., Aranda,Sanchia., Kristjanson, Linda. (n.d.). Predicting Family Caregiver Psychosocial Functioning in Palliative Care. Journal of Palliative Care, 3, 133–140. http://search.proquest.com.ezproxy.auckland.ac.nz/docview/214199194
Imam, Towhid. (2015). The Conversation. Journal of Palliative Medicine, 18(2), 195–196. https://doi.org/10.1089/jpm.2014.0214
J. Jacobs & J. Ostroff. (1998). Family Therapy: A systems approach to cancer care. In Psycho-oncology. Oxford University Press.
Kearney, M. (2009). A place of healing: working with nature & soul at the end of life. Spring Journal Books.
Kirk, Peter clinical professor (family medicine and palliative care)1. (5 C.E.). What do patients receiving palliative care for cancer and their families want to be told? A Canadian and Australian qualitative study. BMJ, 328(7452), 1343–1349. http://www.jstor.org.ezproxy.auckland.ac.nz/stable/41707902
Kissane, D. (2003). Family focused grief therapy. Bereavement Care, 22(1), 6–8. https://doi.org/10.1080/02682620308657563
Klass, D., Silverman, P. R., & Nickman, S. L. (1996). Continuing bonds: new understandings of grief: Vol. Series in death education, aging, and health care. Taylor & Francis. https://ebookcentral.proquest.com/lib/auckland/reader.action?docID=1688972&ppg=26
Krikorian, AliciaLimonero, Joaquin T. (n.d.). An Integrated View of Suffering in Palliative Care. Journal of Palliative Care, 1, 41–49. http://search.proquest.com.ezproxy.auckland.ac.nz/docview/1000455752?accountid=8424
Lederberg, M. S. (1998). The family of the cancer patient. In Psycho-oncology. Oxford University Press.
Lemieux, Laurie1 llemieux@ucalgary.caKaiser, Stefanie2Pereira, Jose3Meadows, Lynn M.4. (2004). Sexuality in palliative care: patient perspectives. Palliative Medicine, 18(7), 630–637. https://search.ebscohost.com/login.aspx?direct=true&db=aph&AN=14797498&site=ehost-live&scope=site
M. Buchholz, W. (2014). Doctor Chaplain, can you help me? Journal of Palliative Care & Medicine, 04(05). https://doi.org/10.4172/2165-7386.1000187
Maguire, P., & Pitceathly, C. (2003a). Managing the difficult consultation. Clinical Medicine, 3(6), 532–537. https://doi.org/10.7861/clinmedicine.3-6-532
Maguire, P., & Pitceathly, C. (2003b). Managing the difficult consultation. Clinical Medicine, 3(6), 532–537. https://doi.org/10.7861/clinmedicine.3-6-532
McCarthy, D. M., Waite, K. R., Curtis, L. M., Engel, K. G., Baker, D. W., & Wolf, M. S. (2012). What Did the Doctor Say? Health Literacy and Recall of Medical Instructions. Medical Care, 50(4), 277–282. https://doi.org/10.1097/MLR.0b013e318241e8e1
McNamara, B., & Rosenwax, L. (2010). Which carers of family members at the end of life need more support from health services and why? Social Science & Medicine, 70(7), 1035–1041. https://doi.org/10.1016/j.socscimed.2009.11.029
Miller, Linda. (n.d.). Effective communication with older people. Nursing Standard, 9, 45–50. http://search.proquest.com.ezproxy.auckland.ac.nz/docview/219811909?accountid=8424
Mount, Balfour1 balfour.mount@mcgill.ca. (2003). Healing and palliative care: charting our way forward. Palliative Medicine, 17(8), 657–658. http://ezproxy.auckland.ac.nz/login?url=http://search.ebscohost.com/login.aspx?direct=true&db=aph&AN=11620175&site=ehost-live&scope=site
Najjar, N., Davis, L. W., Beck-Coon, K., & Carney Doebbeling, C. (2009). Compassion Fatigue: A Review of the Research to Date and Relevance to Cancer-care Providers. Journal of Health Psychology, 14(2), 267–277. https://doi.org/10.1177/1359105308100211
Neimeyer, R. A., Baldwin, S. A., & Gillies, J. (2006). Continuing Bonds and Reconstructing Meaning: Mitigating Complications in Bereavement. Death Studies, 30(8), 715–738. https://doi.org/10.1080/07481180600848322
Parkes, C. M. (1999). Coping with loss: consequences and implications for care. International Journal of Palliative Nursing, 5(5), 250–254. https://doi.org/10.12968/ijpn.1999.5.5.8966
Parkes, C. M., Laungani, P., & Young, B. (1997). Help for the dying and the bereaved. In Death and bereavement across cultures. Routledge. https://site.ebrary.com/lib/auckland/reader.action?docID=10062974&ppg=215
Pasman, H. R. W., Rurup, M. L., Willems, D. L., & Onwuteaka-Philipsen, B. D. (2009). Concept of unbearable suffering in context of ungranted requests for euthanasia: qualitative interviews with patients and physicians. BMJ, 339(nov16 1), b4362–b4362. https://doi.org/10.1136/bmj.b4362
Plant, H. (2001). The impact of cancer on the family. Blackwell Science. https://site.ebrary.com/lib/auckland/reader.action?ppg=148&docID=10346043&tm=1452551322602
Puchalski, C. (2009). Spiritual Issues in Palliative Care. In Handbook of psychiatry in palliative medicine (2nd ed). Oxford University Press.
Rice, A. M. (2000). Sexuality in cancer and palliative care 2: exploring the issues. International Journal of Palliative Nursing, 6(9), 448–453. https://doi.org/10.12968/ijpn.2000.6.9.9057
Rousseau, P. C. (2014). No One Knew. Journal of Palliative Medicine, 17(7), 861–862. https://doi.org/10.1089/jpm.2013.0491
Samuels, M., & Betts, J. (2007). Crossing the threshold from description to deconstruction and reconstruction: using self‐assessment to deepen reflection. Reflective Practice, 8(2), 269–283. https://doi.org/10.1080/14623940701289410
Showalter, S. E. (2010). Compassion Fatigue: What Is It? Why Does It Matter? Recognizing the Symptoms, Acknowledging the Impact, Developing the Tools to Prevent Compassion Fatigue, and Strengthen the Professional Already Suffering From the Effects. American Journal of Hospice and Palliative Medicine, 27(4), 239–242. https://doi.org/10.1177/1049909109354096
Spirituality, suffering and dementia. (n.d.). http://www.nathaniel.org.nz/euthanasia/16-bioethical-issues/bioethics-at-the-end-of-life/134-spirituality-suffering-and-dementia
Spotlight on Palliative Care beyond cancer. (n.d.). http://www.jstor.org.ezproxy.auckland.ac.nz/stable/25738249
Stead, M. L., Brown, J. M., Fallowfield, L., & Selby, P. (2003). Lack of communication between healthcare professionals and women with ovarian cancer about sexual issues. British Journal of Cancer, 88(5), 666–671. https://doi.org/10.1038/sj.bjc.6600799
Steginga S.K., Occhipinti S., Dunn J., Gardiner R.A., Heathcote P., Yaxley J. (2001). The supportive care needs of men with prostate cancer (2000). Psycho‐Oncology, 10(1), 66–75. https://doi.org/10.1002/1099-1611(200101/02)10:1<66::AID-PON493>3.0.CO;2-Z
Stroebe, M. S., Folkman, S., Hansson, R. O., & Schut, H. (2006). The prediction of bereavement outcome: Development of an integrative risk factor framework. Social Science & Medicine, 63(9), 2440–2451. https://doi.org/10.1016/j.socscimed.2006.06.012
The nature of suffering and the nature of opportunity at the end-of-life. (n.d.). Clinics in Geriatric Medicine.
Urquhart, P. (1999). Issues of suffering in palliative care. International Journal of Palliative Nursing, 5(1), 35–39. https://doi.org/10.12968/ijpn.1999.5.1.9929
WALSH, F. (1996). The Concept of Family Resilience: Crisis and Challenge. Family Process, 35(3), 261–281. https://doi.org/10.1111/j.1545-5300.1996.00261.x
What do you want, sorry? Talking about end of life care for people with dementia | EAPC Blog. (n.d.). https://eapcnet.wordpress.com/2013/07/21/what-do-you-want-sorry-talking-about-end-of-life-care-for-people-with-dementia/
White Craig A. (2000). Body image dimensions and cancer: a heuristic cognitive behavioural model. Psycho‐Oncology, 9(3), 183–192. https://doi.org/10.1002/1099-1611(200005/06)9:3<183::AID-PON446>3.0.CO;2-L
Wynne, Lianne1 (NURSE) Lianne.Wynne@clatterbridgecc.nhs.uk. (2013). Spiritual care at the end of life. Nursing Standard, 28(2), 41–45. http://ezproxy.auckland.ac.nz/login?url=http://search.ebscohost.com/login.aspx?direct=true&db=aph&AN=90326067&site=ehost-live&scope=site
Yedidia, M. J., & MacGregor, B. (2001). Confronting the Prospect of Dying. Journal of Pain and Symptom Management, 22(4), 807–819. https://doi.org/10.1016/S0885-3924(01)00325-6
Zapka, Jane G. ScD. (n.d.). End-of-life Communication and Hospital Nurses: An Educational Pilot. The Journal of Cardiovascular Nursing, 21(3), 223–231. http://ovidsp.ovid.com.ezproxy.auckland.ac.nz/ovidweb.cgi?T=JS&CSC=Y&NEWS=N&PAGE=fulltext&AN=00005082-200605000-00011&LSLINK=80&D=ovft
